Milli was diagnosed with a GBM brain tumour at the age of 9, after her parents noticed she complained of a headache and vomiting. Monica and Grant knew after the first headache what was happening and their first thoughts were confirmed after her biopsy. Her cousin Sophie had previously passed of a GBM at the age of 7 with exactly the same symptoms.

Our family have a rare genetic disorder called Li Fraumeni Syndrome where we are missing the Tp53 gene to combat “rogue” cells. 50% of cases will be diagnosed with cancer as a child, by the age of 50 you are guaranteed to have had a cancer of some type. The syndrome has devasted our family, Milli has lost her grandmother, uncle, 2 cousins and currently her older sister Tess and mother are fighting for extra time with their cancers.

Five immediate family members were diagnosed in 2015/2016 and 3 have passed, leaving Tess and Monica. Tess also was diagnosed with a brain tumour and now has been left legally blind from the operation, unable to gain her licence and requires help in her day to day living. Tess is currently 6 years cancer free, and Monica still fighting her sarcoma. When Monica was educating herself with the Syndrome and treatment options, she discovered options were limited in WA.

Milli went and had her treatment, 6 weeks of radiation and 3 months of chemotherapy. When Milli relapsed we knew we had to get the tumour removed again and then find other treatment options, but there were none in WA.

We gained amazing support from WA and around the world for Milli to be operated on by world renown neurosurgeon Charlie Teo, and with a fresh start after the operation, we could decide on the best treatment for Milli. With Charlie's help we ventured to Germany to look at alternative therapies, which again are available in the eastern states but not in WA.

After Germany and her protocols written up we could then go to Melbourne for the treatment at the NIIM clinics. There Milli had IVS, hyperthermie treatment and oxygen chamber. Previously we were given 12 months maximum and told to take her away for a holiday, but we managed to keep our angel here for 5 years with the help of WA and Charlie Teo.

Our mission is to provide a complementary alternative, holistic treatment clinic for Western Australians, so that they too can decide on their treatment options just like people in Victoria, New South Wales and Queensland can do.

The clinic will also provide sick children a chance to record their own song, Milli recorded her own CD and we know much how she loved it. The sound proof studio will give terminally ill children a chance to play all instruments, pick a song, record it and take away with them. It’s a lovely gesture for the families.

All profits will be going to the foundation.